About Me

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I'm 57 and had M.E/CFS symptoms for as long as I can remember. Diagnosed 1988, as was my daughter, then aged just barely 11. Crafting has kept me sane through these many years and I've tried my hand at lots of things. Currently I'm cardmaking and crocheting,but also enjoy, drawing, writing poems, scrapbooking, making jewellery, fimo, needle felting, dressmaking...I could make a long list. As a dedicated Jehovah's Witness I also, naturally, have a keen interest in the Bible. See my projects on my CDAC Page http://priscillastyles.ning.com/profile/LINDAWESCOTT#?= as well as my crafting blog, link through badge below

Friday, 16 September 2011

30 Things about my Invisible Illness you may not know.


1. The illness I live with is: M.E/CFS, I prefer the term M.E
2. I was diagnosed with it in the year: 1987
3. But I had symptoms since: On and off since a child
4. The biggest adjustment I’ve had to make is: Having to do far less than I want to
5. Most people assume: That I could do things/see them if I really wanted to. 
6. The hardest part about mornings are: Knowing it will just be a variation of every other day. 
7. My favorite medical TV show is: Casualty..I know, shameful of me isn't it lol. 
8. A gadget I couldn’t live without is: Well, I've discovered that is my laptop
9. The hardest part about nights are: Waking up every hour or so. 
10. Each day I take: numerous homeopathic pills, flower remedies  & vitamins. 
11. Regarding alternative treatments I: take from them what I find useful to help me get through my days....I've never considered any one thing as a possible cure. 
12. If I had to choose between an invisible illness or visible I would choose: Naturally I'd choose not to be will, but as a choice between I would always go 'with the devil I know'.
13. Regarding working and career: What's that!!!!!!
14. People would be surprised to know: How busy and active i used to be, I loved heavy gardening, would happily walk everywhere....whatever extremes of weather. Did Karate up to a year before becoming ill. 
15. The hardest thing to accept about my new reality has been: Not being able to see my grandson on a regular basis, and not being able to play with him any more, or engage in activities with him. 
16. Something I never thought I could do with my illness that I did was:Get Married for a second time 
17. The commercials about my illness: Are very rare. 
18. Something I really miss doing since I was diagnosed is: Spending time with others. 
19. It was really hard to have to give up: My complete independence 
20. A new hobby I have taken up since my diagnosis is: You name it, I've done it. Trying new hobbies has become a hobby in itself.
21. If I could have one day of feeling normal again I would: Walk the dog, get my sewing machine out and make an outfit, take my grandson out, attend a meeting, cook a meal for a huge group of friend....and any spare time inbetween I'd dance. 
22. My illness has taught me: Patience, acceptance, faith, how to appreciate the small and very beautiful things in life. 
23. Want to know a secret? One thing people say that gets under my skin is: I'm passed being bothered to be honest, but figuratively roll my eyes when ones say, Oh, I'm tired too, you'll be better after a good nights sleep. 
24. But I love it when people: Accept me for however I am at that particular time..even if that happens to be something completely different each time. 
25. My favorite motto, scripture, quote that gets me through tough times is: For all things I have the strength by virtue of him who imparts power to me.Phil 4:13 - not that I expect physical strength but boy do I need emotional strength to keep going. 
26. When someone is diagnosed I’d like to tell them: Learn to accept and make the most of your life as it is now, keep hold of the hope of getting better again. 
27. Something that has surprised me about living with an illness is: How inventive you become, in finding ways to carry on doing what you want with the least exertion. 
28. The nicest thing someone did for me when I wasn’t feeling well was: Take photographs of the outside world so I could share it with them.
29. I’m involved with Invisible Illness Week because: It may help someone else, either understand, or see that they are not alone
30. The fact that you read this list makes me feel: That I've reached at least one person.
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